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Your contribution directly funds manufacturing runs, safety studies, and IND-enabling work.
DonateGet Involved
There are many ways to support CDKL5 gene therapy development — donate, host or attend an event, volunteer, or join our caregiver network. Every action brings us closer to clinical trials.
Upcoming Fundraiser · May 30, 2026
UMEED! A Bollywood Musical Fundraiser
TriValley Melodies presents a Bollywood musical night by Bay Area’s top singers to benefit CDKL5 gene therapy research.
Saturday, May 30, 2026 · 6–10 PM
Tandoori Pizza · 3350 Zanker Rd, San Jose, CA
Entry: $10 · Open Mic for an hour
🔬 Internship Opportunity
We are inviting motivated interns, age 14 and above, to join our 7-week virtual internship from June 1 to July 17 and contribute to meaningful CDKL5 projects across small molecule, gene therapy, and mRNA-based therapy.
This is a part-time, unpaid opportunity, but interns will receive full credit for their contributions, including recognition in publications where applicable. There is also a possibility of extension beyond the initial internship period.
This is a great opportunity to work alongside industry leaders, gain hands-on exposure to real-world biotech research, build a strong foundation in a cutting-edge field, and solve real world problems.
How to Apply
Email support@cdkl5genetherapy.com with your resume and a brief note of interest. The interview process includes an initial screening, followed by two technical interviews.
Apply by: 8-May-2026
Start a Fundraiser
Create a GoFundMe campaign to support CDKL5 research in honor of your loved one.
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Volunteer your time to help with awareness campaigns, events, and caregiver support.
Sign upHost an Event
Host a community fundraiser or informational session to raise funds and awareness locally.
Plan an EventActive GoFundMe Campaigns
Support existing campaigns making a difference for CDKL5 research
A Cure for Ahaana
Support Ahaana's journey toward CDKL5 gene therapy. Every contribution brings hope to her family and advances research for all CDKL5 patients.
Donate on GoFundMe →Hope for Roisin
Support Roisin's fight against CDKL5 Deficiency Disorder. New research efforts could change her life—every little bit helps.
Donate on GoFundMe →Hope for Georgia
Support Georgia's fight against CDKL5 Deficiency Disorder. New research efforts could change her life—every little bit helps.
Donate on GoFundMe →