Get Involved

There are many ways to support CDKL5 gene therapy development — donate, host or attend an event, volunteer, or join our caregiver network. Every action brings us closer to clinical trials.

Donate

Your contribution directly funds manufacturing runs, safety studies, and IND-enabling work.

Donate

Start a Fundraiser

Create a GoFundMe campaign to support CDKL5 research in honor of your loved one.

Create Campaign

Volunteer

Volunteer your time to help with awareness campaigns, events, and caregiver support.

Sign up

Host an Event

Host a community fundraiser or informational session to raise funds and awareness locally.

Plan an Event

Active GoFundMe Campaigns

Support existing campaigns making a difference for CDKL5 research

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A Cure for Ahaana

Support Ahaana's journey toward CDKL5 gene therapy. Every contribution brings hope to her family and advances research for all CDKL5 patients.

Donate on GoFundMe →
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Hope for Roisin

Support Roisin's fight against CDKL5 Deficiency Disorder. New research efforts could change her life—every little bit helps.

Donate on GoFundMe →
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Hope for Georgia

Support Georgia's fight against CDKL5 Deficiency Disorder. New research efforts could change her life—every little bit helps.

Donate on GoFundMe →