Support CDKL5 Research

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How will my donation help CDKL5 research?

Your donation directly supports the development of AAV9 gene therapy for CDKL5 Deficiency Disorder, bringing us closer to the first human trial.

Every dollar you give funds real progress:

  • Clinical trial costs & patient support: 40%
  • Gene therapy manufacturing: 35%
  • Preclinical testing & FDA approval: 25%

This is a parent-led initiative, built entirely by volunteers who are committed to changing the future for children with CDKL5.

We do not allocate funds to overhead, salaries, or administrative expenses — 100% of your contribution goes directly toward research and program costs.

✓ Tax-Deductible
| EIN: 83-3715487

Questions about donating?

Email: support@cdkl5genetherapy.com